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Survey

Towards a quantitative definition of Neurodiversity
Research Suggestions
 
Our survey is currently under active development, and we hope to have a public version out shortly. We want to make sure we’re asking all the right questions before we ask anyone to invest time and effort into filling it out. In the meantime, please submit
Research Suggestions
⁠
here!
Note: this survey is not currently subject to an IRB, and the answers provided are available to anyone looking at this document. This is a preliminary attempt to gather information and will be used towards an IRB-approved research project in the mid future.
Note that there is no personally identifying information in the survey, and your answers are 100% anonymous. (If you are logged into coda when you take the survey you’ll be given the choice to fill it out anonymously.)
Check the
Scale
⁠
for information about how to answer on the questions that want a value from 1-10. Spoiler alert: most of your answers should probably fall between 4-6 unless you experience something significantly differently than the general population.
⁠

Sample Data

Here’s a partial sample dataset. The survey is not currently accepting new data, and the existing data is not really valid because a bunch of questions were added after most of the answers were already submitted but I leave it here as a proof of concept.
Total Replies in Sample Dataset:
52
⁠
⁠
Neurotype:
⁠
⁠
Trait:
⁠
⁠
Comparing Selected Trait by Neurotype
⁠
Qualitative Survey Feedback
Search
2
3
4
5
6
7
8
9
10
11
12
13
14
15
16
17
18
19
20
21
22
23
24
25
26
28
29
30
31
32
33
34
35
36
37
38
39
40
41
42
43
44
45
46
47
48
49
50
51
52
53
54
2
age
38
ancestry
gender
Is Genderqueer
country
hours_worked
30
income
$200,000.00
neurotype
special_interest
suggested_research
feedback
Show hidden columns
⁠
⁠

The currently proposed survey (v0.14) captures some demographic data as well as asking for
Scale
⁠
or
binary choice data
⁠
values for each of the following
77
⁠
fields:
Proposed Measurements
aspect
concept
field name
field type
sensitivity
7
hearing
sound_sensitivity
vision
visual_sensitivity
taste
taste_sensitivity
smell
smell_sensitivity
touch
touch_sensitivity
emotion
emotion_sensitivity
stress
stress_sensitivity
seeking
6
hearing
sound_seeking
vision
visual_seeking
taste
taste_seeking
smell
smell_seeking
touch
touch_seeking
emotion
emotion_seeking
processing_speed
7
hearing
sound_processing
vision
visual_processing
taste
taste_processing
smell
smell_processing
touch
touch_processing
emotion
emotion_processing
reading
reading_speed
attention
7
hearing
sound_attention
vision
visual_attention
taste
taste_attention
smell
smell_attention
touch
touch_attention
emotion
emotion_attention
energy
energy_attention
regulation
3
attention
attention_regulation
emotion
emotional_regulation
impulse
impulse_regulation
abstract reasoning
5
written language
abstract_verbal_reasoning_written
spoken language
abstract_verbal_reasoning_spoken
mathematics
abstract_mathematical_reasoning
emotion
abstract_emotional_reasoning
space
abstract_spatial_reasoning
frequency
10
stimming
stimming_frequency
meltdown
meltdown_frequency
shutdown
shutdown_frequency
physical tics
tics_physical
verbal tics
tics_verbal
seizures
seizures
stress
stress_frequency
mutism
mutism_frequency
defensiveness
defensiveness_frequency
masking
masking_frequency
intensity
5
hobby
intensity_hobby
emotions
intensity_emotions
sensory
intensity_sensory
focus
intensity_focus
period
intensity_period
regularity
1
period
regularity_period
amount
2
energy
energy_levels
executive function
executive_function
health
1
gut
gut_health
ease
4
communication - being understood
being_understood
communication - understanding others
understanding_others
routine
routine_ease
masking
masking_difficulty
comfort
4
social - groups
social_group_comfort
social - individual
social_individual_comfort
social - strangers
social_stranger_comfort
social - conflict
comfort_conflict
stress
4
travel
stress_travel
isolation
stress_isolation
social
stress_socialization
masking
stress_masking
impact
4
energy
energy_accommodation
routine
routine_importance
depression
impact_depression
anxiety
impact_anxiety
medication
4
depression
medicated_depression
anxiety
medicated_anxiety
adhd
medicated_adhd
cannabis
medicated_cannabis
narrative
3
control
narrative_control
generation
narrative_generation
​
​
⁠


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